Waking up to meet a very very very very very challenging day. Going to bed and feeling that life goes on. And on. And on! I love life! So be it! To grasp the content and nature of this day – right now, I can not. Check @akrogirl stories on an app focused on instant life sharing, some hours ahead. Making alot of remixes of an Alien Emoji felt like a great Lullaby Meditation. The crescendo of the remixes made, was finalized by Nadine, big sister to #MikaTheAngel … and yes, he is now flowing in #TheOtherworld … ….the One…
Last shot! Going home tomorrow! Hooray!
One of the strongest things to deal with at the hospital, and wait for e. g. those five hours of ATG infusion to sink in, is boredom. Here, with the help of good old Yatzy! All fine, tomorrow last treatment!
Five hours more of infusion of ATG. Controls made frequently during treatment as seen in pic. Good thing he can borrow stuff to play with when fixed to a cord and not to leave the room and corridor. Two days to go. Mika is ok. Going home Monday! Photo by Karin.
He got the second ATG infusion of five today, and all is fine. A small fever in late afternoon, but nothing serious. He also got a blood transfusion in the night, yesterday he got trombocytes the same time. Brave Mika living thru it!
He got his first out of five ATG infusions today. No reactions! All fine. And our MD spoke to the donor coordinator in Sweden for bone marrow stem cells at Huddinge Hospital, and they have found three potential donors out there! We haz hope!
Now we have a diagnosis. Mika has aplastic anemia. It’s a serious blood disease, where his bone marrow doesn’t produce blood cells. No red, no white, no trombocytes. https://en.m.wikipedia.org/wiki/Aplastic_anemia Next week they will start with ATG treatment, and start to look after a donor of stem cells for a bone marrow transplant. A process of months ahead. We’re definitely in need of mental and moral support and lots of prayers. We keep strong! We will make it!
Mika and me at the outdoor roof terrace playground of the children’s hospital in Linköping.
In an operation, Mika got a central line to ease up blood sampling and infusions. At the same time, today he could leave the hospital. Still not knowing what he suffers from, daily blood sampling will continue. Mika The Hero truly is a good naming!
Time to go fully public with Mika’s situation. One suspicion from his low blood values was leukemia, so he has been at Dept. B53 BOND at H R H Crown Princess Victoria’s Children Hospital in Linköping, where e. g. cancer sick children are investigated and treated. After his bone marrow sample was analyzed at Karolinska in Stockholm, lekuemia has been RULED OUT! Phew! So investigation continues. Anyways, we will spend the weekend at home, so going home tomorrow! Photo by Karin.
Did it today. The annual together-with-my-kids Birthday Photo at the playground terrace at the kiddie hospital in Linköping, with Mika undergoing investigation. Not the regular place to celebrate. But – love is everywhere! Thanks for a loveful b-day, family!
At the hospital. Investigation continues. Here – a little pizza break.